Butterfly Free

by Jamie Hartley

No one told you how to grow wings

You're not meant to stay on the ground

The net will ensnare

those soft wings will tear

flutter, float, fly free

All the flowers match your true colors

Kept by the keeper and frail as you

They all turn their heads

To see your wings spread

flutter, float, fly free

Flutter high, butterfly

Lifted by every try.

Glide near by, stay, for I

Am lifted high to see you fly.

Petals for your silky sails give

Nectar to float those masterful wings

The thanks that you give

Brings more life to live

Flutter, float, fly, free


Cristina

Vanessa

Brittany

Michael

Emmy Lou

Samantha

Joshua

Justin

Garrett

Emily

Cassandra

Cori

Thomas

Daisy

McKenzie

Taylor

Shardai

Nicholas

Monique

Jennifer

Merley

Stevie

Lizie

Omayra

Michelle

Edward

Tatum

Katora

Kelly

Novelette

Lorien

Ben

Alexander

Elizabeth

Drake

Jessica

Bruce

Allyson

Tyler

Brandi

Lori

Michelle

Emily

Ryan

Bianka

Ian

Kyle

Braiden

Sara

Sarah

Zackary

Bobbibeth

Miguel

Matthew

Jonah

Armando

Rachel

Chelsey

Natasha

Ellie

Anthony

Jeremiah

Samantha

Dagney


With skin as delicate as a butterfly wing, people who suffer with EB are often referred to as "Butterfly Children." I am often puzzled by people telling me that I inspire them. How am I an inspiration? I just do what I have to do. How is that inspiring? That question has been answered by the many others I have met who also suffer with EB. My life is better just knowing that they are out there living each day, trying their best. I am lifted by just knowing them.

This song was written for my Butterfly Friends, both the living and not living.

-jamie

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